MCW Defined Public Data Sets

Per 45 CFR 46.101, research using certain publicly available data sets does not involve “human subjects”. The data contained within these specific data sets are neither identifiable nor private and thus do not meet the federal definition of “human subject” as defined in 45 CFR 46.102. Therefore these research projects do not need to be reviewed and approved by the Institutional Review Board, (IRB). MCW HRPP office has worked with a number of investigators to identify and classify numerous data sets as "publicly available data sets" or "restricted use data sets".

MCW Defined Public Data Sets

MCW HRPP office has worked with researchers to identify and classify numerous data sets as "publicly available data sets" or "restricted use data sets" to facilitate MCW research initiatives.

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Data Set Nomination Process

If the identified data set has not been listed as either an MCW designated Public Data Set or as a Restricted Use Set, Investigators should review the IRB policy to confirm their identified data set qualifies under the IRB policy, along with completing the Public Data Set Nomination Checklist (DOCX).

This will allow the HRPP Office to make a determination after reviewing the data set, their policies and procedures, and data use agreement templates. The nominating investigator will receive a letter with the HRPP Office's determination and should not access the data set until a determination has been made.

Contact the IRB Office to submit the data set nomination once completed.

IRB SOP: Public Data Sets

MCW Designated Public Data Sets

All of Us Research Hub
American College of Surgeons National Trauma Data Bank (NTDB)
American Hospital Association Annual Survey
Behavioral Risk Factor Surveillance System (BRFSS; public data only)
CDC - Pregnancy Risk Assessment Monitoring System (PRAMS)
CDC - Wide-ranging Online Data for Epidemiologic Research (WONDER)
Comprehensive Hospital Abstract Reporting System (CHARS; public data only)
Demographic Health Survey (DHS), Standard and Interim Surveys
Diversity Data Kids (including Child Opportunity Index)
Fatality Analysis Reporting System (FARS)
Gene Expression Omnibus (GEO)
Global Burden of Disease (2013)
Health and Aging in Africa: A Longitudinal Study of an INDEPTH Community in South Africa (HAALSI; Public Data Only)
Health Information National Trends Survey (HINTS)
Health Retirement Study (HRS; Public Data Only)
Healthcare Cost and Utilization Project (H-CUP) healthcare databases
- The Kids’ Inpatient Database (KID)
- The State Inpatient Databases (SID)
- The State Ambulatory Surgery Databases (SASD)
- The State Emergency Department Databases (SEDD)
- The Nationwide Ambulatory Surgery Sample (NASS)
- The Nationwide Emergency Department Sample (NEDS)
- The Nationwide Inpatient Sample (NIS)
- The Nationwide Readmissions Database (NRD)
Home Mortgage Data Act (HMDA)
Hospital Compare
Integrated Public Use Microdata Series International (IPUMS)
Inter-University Consortium for Political and Social Research (ICPSR) – public use data only
- National Latino and Asian American Study (NLAAS) – public use data only
Mapping Inequality
MarketScan Databases
- Commercial Claims and Encounters (CCAE)
- Coordination of Benefits (COB)
- Medicare Database
- Medical Expenditure Panel Survey (MEPS)
- Household Component Full-Year files
- Household Component Event files
- Household Component Point-in-time files
- Pooled Linkage files
Medicare Healthcare Cost Report Information System (HCRIS)
Midlife in the United States (MIDUS; Public Data Only)
Milwaukee Property Records (MPROP)
National Automotive Sampling System (NASS) General Estimates System (GES)
National Center for Health Statistics
- Life Tables
- LSOAs: Longitudinal Studies of Aging
- NHANES: National Health and Nutrition Examination Survey
- NHCS: National Health Care Survey
- NHIS: National Health Interview Survey
- NIS: National Immunization Survey
- NSFG: National Survey of Family Growth
- SLAITS: State & Local Area Integrated Telephone Survey
- Vital Statistics: National Vital Statistics System
National Center for Education Statistics
National Election Studies
National Epidemiologic Survey on Alcohol and Related Conditions (NESARC)-Wave 1 & Wave 2
National Longitudinal Survey (NLSY)
- National Longitudinal Survey of Youth 1997 (NLSY97)
- National Longitudinal Survey of Youth 1979 (NLSY79)
- NLSY79 Children and Young Adults
- National Longitudinal Survey of Young Women and Mature Women
- National Longitudinal Survey of Young Men and Mature Men
National Survey of Children’s Health (public version)
National Survey of Children with Special Health Care Needs (public version)
National Household Travel Survey
Organ Procurement and Transplantation Network (OPTN)
Roper Center for Public Opinion Research
School Health Policies and Programs Study (SHPPS)
Survey of Consumer Finances (SCF)
Uniform Crime Reporting Statistics
U.S. ATF Firearms Trace Data
U.S. Bureau of the Census
U.S. Bureau of Labor Statistics
Web-based Injury Statistics Query and Reporting System (WISQARS)
Wisconsin Incident Based Reporting System (WIBRS)
Wisconsin Interactive Statistics on Health (WISH)
Wisconsin Longitudinal Study (WLS) non-DNA Survey Data
Wisconsin Public Instruction Data
World Health Organization Global Health Observatory Data Repository (WHO GHO Data Repository)
Youth Risk Behavior Surveillance System (YRBSS)

Restricted Use Data Sets

Use of these data sets require IRB submission and determination prior to their use in research:

NCI SEER
American College of Surgeons - National Surgical Quality Improvement Program
American College of Surgeons - National Cancer Database (NCDB)
National Anesthesia Clinical Outcomes Registry (NACOR) Participant Use Data File (PUF)