Kerry Hughes Named Mellowes Center’s Rare Disease Ambassador

Kerry Hughes, President and Founder of Harmony 4 Hope (H4H), has been named the Mellowes Center’s Rare Disease Ambassador. Kerry has dedicated her career to amplifying the voices of those affected by rare diseases, fostering meaningful partnerships that align seamlessly with the Center’s mission to translate genomic research into real-world advancements that improve patient care.

Harmony 4 Hope is built on the belief that music and storytelling have the power to inspire scientific discovery, educate future physicians and researchers, and unite communities for rare disease awareness. Through storytelling and song, H4H has become a recognized leader in rare disease advocacy and research—an approach that deeply resonates with the Mellowes Center’s commitment to patient-centered care.

As Rare Disease Ambassador, Kerry will strengthen connections between patients, clinicians, and researchers by facilitating partnerships that bring patient stories to the forefront of scientific discovery. Together, they will co-host Rare Storytellers® blending music and narrative medicine, to advocate for improved diagnosis and treatment of rare diseases and expand educational initiatives. Her leadership will ensure that patient voices remain central to research and innovation, inspiring new avenues of collaboration and discovery.

The Mellowes Center remains committed to engaging directly with the rare disease community, and Kerry’s appointment reinforces their dedication to meaningful outreach. The Center looks forward to continuing its partnership with Kerry to develop new events, expand educational opportunities, and explore funding avenues that support innovation in rare disease research and care.

Please join The Mellowes Center in celebrating Kerry Hughes in this vital new role. Together, they will drive forward rare disease research so that each discovery translates into real progress for patients and families affected by rare diseases.