Medical College of Wisconsin Ophthalmology and Visual Sciences Research Study - Inherited Retinal Degeneration Bank

Purpose of study:

This project is being done to collect as much data as possible for future research on inherited retinal degenerations. In the future, other doctors and scientists at this and other medical and research centers may use this health information to learn about different diseases and conditions. Their goal is to improve health and develop new treatments.

What is an inherited retinal degeneration?

An inherited retinal degeneration is an eye condition passed down in families that causes vision loss due to death of photoreceptors.

What is involved in this project?

The study team would collect information about your eyes and health from your medical record and/or past research records. This data would be banked and kept for the purpose of future unspecified research. Banking is storing health information for future research. A bank is the place where it is stored.

Compensation:

Research participants will not be compensated for this project.

You may be eligible to participate in this study if you meet these criteria.

You are 7 years of age or older.
You have a diagnosis of an inherited retinal degeneration

More Information:
IRB Approval: 01/30/2022

Please select an option below.

* I am interested in participating in the Inherited Retinal Degeneration Bank project. I am a family member of someone who is interested in participating in the Inherited Retinal Degeneration Bank project.

Your Information

First Name *

Last Name *

Email Address *

City, State *

Phone Number *

Family Member's Name (if applicable)

Please answer Yes or No to the following questions. (You refers to you or your family member as appropriate.)

Have you been told by a doctor that you have an inherited retinal degeneration/disease? * Yes No

Are you 7 years of age or older? * Yes No

Are you currently or have you ever been a patient at the Eye Institute? * Yes No Not sure

Additional Information

Comments or Questions

By submitting this form, I acknowledge that I would like to be contacted about the Inherited Retinal Degeneration Bank and understand that submission of this form in no way obligates me to participate in this study.

We will contact you as soon as we can. Thank you for your patience.

If you have questions, please contact Phyllis Summerfelt at (414) 955-2001.